Grace Today Blog

When a suffering and contorted child or adult finds dramatic help from their Dystonia it is a chance to stand and shout it from the rooftop!

That is why it is with great pleasure and rejoicing that I share this story of DBS and Dystonia with you.  It is a story of a seemingly perfectly normal child whose life is turned upside-down when he begins to show signs of Dystonia at age 11. What is Dystonia? Dystonia is a neurological disorder which causes muscles to contract involuntarily, forcing affected … Continue Reading

Be inspired by this poem written by a woman with Dystonia.

The Game Of Spasms

by Sharon Mazurek

“My life in the game of spasms is like any game we play
I wake up in the morning and I always start to pray
Will the game that I choose to play today be easy like a toddler?
Or will that game I chose to play make my spasms feel tauter?

When we play a game of baseball
We always want to score
But in The game of spasms we might just be too sore

It does not really matter if win or lose the game
As long as we can walk … Continue Reading

Is Desiree Jennings faking Dystonia?

I realize this post is a little out of the ordinary from my usual posts on this blog. Normally I try to keep all my posts to stories and inspirational thoughts to give hope and encouragement to caregivers, parents of special needs children, and anyone else in challenging circumstances.  But today it seemed necessary, given the recent news story about Desiree Jennings on 20/20, that I should write about it in my blog. You can read more about the news story at the … Continue Reading