That is why it is with great pleasure and rejoicing that I share this story of DBS and Dystonia with you. It is a story of a seemingly perfectly normal child whose life is turned upside-down when he begins to show signs of Dystonia at age 11. What is Dystonia? Dystonia is a neurological disorder which causes muscles to contract involuntarily, forcing affected body parts into awkward and often painful positions.
Sometimes Dystonia is caused by a genetic flaw in the genetic code. This was the case for Michael Sharp. By the time his Dystonia was diagnosed and Deep Brain Stimulation was recommended, his whole body was affected with painful contortions and he was on several strong pain medications that left him unable to concentrate or even remember basic things like his friends’ names. Discoveries Magazine has written a wonderful and inspiring story about his life and the miraculous affect of DBS.
Watch his video. Truly a miracle!
DBS isn’t the cure-all for everyone with Dystonia. So far, it hasn’t helped our son, David. But we still have hope and they are discovering new things about Dystonia and DBS all the time. In the meantime we continue to look to the Lord to open doors of help and relief for him and to give us the grace and perseverance for each day.
Many blessings to you!