I Am The Disabled Child – Poem

A friend tagged me on Facebook with this poem. At first I didn’t want to bother reading it because so many of these types of things are written with a bitter attitude and an attitude of “the world owes me”.

But I was pleasantly surprised at the grace and kindness of this poem. I think you will enjoy it!

 

 

I AM THE DISABLED CHILD

I AM THE CHILD WHO CANNOT TALK. You often pity me. I see it in your eyes. You wonder how much I am aware of…I see that as well. I am aware of much…whether you are happy or sad or fearful, patient or impatient, full of love and desire, or if you are just doing your duty to me. I marvel at your frustration, knowing mine to be far greater- for I cannot express myself nor my needs as you do. You cannot conceive my isolation- so complete it is at times. I do not gift you with clever conversation or cute remarks to be laughed over and repeated. I do not give you answers to your everyday questions, responses over my well-being, share my needs, or comments about the world around me. I do not give you rewards as defined by the WORLD’S standards…great strides in development that you can credit yourself. I do not give you understanding as you know it.

What I give you is so much more valuable… I give you instead opportunities: Opportunities to discover the depth of your character- not mine; the depth of your love, your commitment, your patience, your abilities; the opportunity to explore your spirit more deeply than you imagined possible. I drive you further than you will ever go on your own, working harder, seeking answers to your many questions- creating questions with no answers. I AM THE CHILD WHO CANNOT TALK.

I AM THE CHILD WHO CANNOT WALK. The world sometimes seems to pass me by. You see the longing in my eyes to get out of this chair- to run and play like other children. There is much you take for granted. I want the toys on the top shelf. I need to go to the bathroom…oh…I’ve dropped my spoon again! I am dependent on you in these ways. MY gift to you is to make you aware of your great fortune: your healthy back and legs, your ability to do for yourself. Sometimes people appear not to notice me- I always notice them. I feel not so much envy as desire; to stand upright, to put one foot in front of the other, to be independent. I give you awareness. I AM THE CHILD WHO CANNOT WALK.

I AM THE CHILD WHO IS MENTALLY IMPAIRED. I don’t learn easily if you judge me by the WORLD’S measuring stick. What I do know is infinite joy in the simple things. I am not burdened as you are with the strifes and conflicts or a more complicated life. MY gift to you is to grant you the freedom to enjoy things as a child: to teach you how much it means to have your arms around me- to give you love. I give you the gift of simplicity. I AM THE CHILD WHO IS MENTALLY IMPAIRED.

I AM THE DISABLED CHILD. I am your teacher. If you allow me- I will teach you what is really important in life. I will give you and teach you unconditional love. I give you my innocent trust- my dependency upon you. I teach you respect for others and their uniqueness. I teach you about the sanctity of life. I teach you about how very precious life is and about not taking things for granted. I teach you about forgetting your own needs and desires and dreams. I teach you giving. Most of all, I teach you Hope and Faith.

I AM THE DISABLED CHILD – ENABLE ME

~ author Unknown ~

 

Please share this with others!

Have a blessed Thanksgiving!

 

Dayna

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How To Find a Good Caregiver

How do you find a good caregiver?

Two years ago our son qualified for 30 hours of caregiving help. We were thrilled! Finally, after many months of dead ends, we were going to be getting!

Now the question, “How to find a GOOD caregiver?”

Thankfully, the first person who showed up at our door was a perfect fit for David. We still have her in the afternoons and she has been a huge blessing.

We also had a fantastic morning caregiver. She, too, was perfect for David but in different ways. Our morning caregiver was like a big sister to David. She was strong, cheerful and could play his hand help game with him. That was an added plus since his Dystonia had gotten to the point where it was too difficult for him to play himself.Dayna Camp

Sadly, we lost Candace, our morning caregiver. She left our caregiving company for a full time position.

So now we find ourselves in the position again of finding another morning caregiver. This time, it hasn’t been so easy.

But now, after two years we know a few more things.

We know better what to look for in a good caregiver. We have our list.

I’m going to share my list with you in hopes that it could help you or someone you know who is looking for a good caregiver.

 

 

Of course, my list won’t be exactly like your list since David’s needs aren’t the same as your loved one but it will be a place to start and will at least help you get your wheels turning.

1. We need someone strong. Although our caregivers from the company we are using aren’t supposed to “lift” David, they do need to “transfer” him. He is 6 ft tall and cannot walk or stand on his own so we need someone strong.

2. Someone who isn’t “large” (to put it nicely). That just won’t be able to maneuver David in the bathroom since it is not a wide space. Plus, they have to be able to get him downstairs on the stairlift and that isn’t easy for a large person.

3. Someone who is patient. It takes David a long time to spell out his answers on his alphabet chart.

4. Someone who is cheerful. What more can I say about this point? It’s miserable to have to be around someone who isn’t cheerful when you don’t have a choice.

5. The cherry on top was someone who can play his hand help, DS Gameboy. But after going through 5 or 6 people and even trying one out for the past 2 months, I realize that there are other things more important than someone being able to play his game with him. What would be your cherry on top?

6. Someone who is confident and can learn fairly quickly.

7. Someone who will enjoy being a companion and friend to David and not just a babysitter. He enjoys doing a word search book with someone.

8. Of course someone you can trust in your home. I almost didn’t write that one down since it should go without saying.

 

I hope these are helpful to you or someone you know who find themselves in the position of finding a good caregiver.

Now, get out a sheet of paper and make your own list that takes into consideration the individual needs of your loved one.

And me? I’m starting over at square one since the morning caregiver we now have isn’t working out. But I know there is someone out there who will be a perfect fit for David.

If this post help you please share it!

I’d love to hear your thoughts in the comments below!

Be blessed!

 

Dayna Camp

Dayna Camp

 

 

 

 

 

 

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He Who Led You In…

This same God who led you in will lead you out!

I don’t know about you but to me that is so comforting!

Of course we know that life it not just smooth sailing or a bed of roses. With the sailing

comes high winds and storms at times and with the beautiful roses there are also thorns.

That’s what the story of the Israelites is all about!

I’ve been reading a great little book called The Red Sea Rules – 10 God Given Strategies for Difficult Times. 

For the next several GraceNotes, I will probably be quoting from this wonderful little book.

red sea rules

In the story of the Red Sea, the Israelites followed the pillar of cloud and fire as carefully as possible, thrilled with their new freedom, full of excitement about the future.  Yet as they followed Him, God deliberately led them into a cul-de-sac between hostile hills, to the edge of a sea too deep to be forded and too wide to be crossed.

(pg. 6 of  The Red Sea Rules)

 

You know, on a side note, I’ve heard people try to explain away the miracle of the parting of the Red Sea. One “explanation” is that the water was so shallow at that particular spot that it was easy for the Israelites to cross. If it were that shallow, then it would truly be a miracle that Egyptian’s strong army drowned in the Red Sea while the Israelites, women and children included, made it safely across!

The Lord led the Israelites to this hard place. But He didn’t leave them there. Here is something to think about that should give you encouragement.

 

Here is a deeper secret of the Christian life:

…when you are in a difficult place, realize that the Lord either placed you there or allowed you to be there for reasons perhaps known for now only to Himself.

 

The same God who led you in will lead you out!

And know that He will cause all things to work together for good in your life if you love Him.  (Romans 8:28 paraphrased)

And in all things give thanks!

Be blessed! Be inspired!

Dayna Camp

me and kate

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Enjoy the Moment! Enjoy the Journey!

 You will never have this moment back.

Enjoy the Moment. You will never have it back.

It’s so easy to get wrapped up in our goals, plans and dreams and forget to live each moment.
In this short video, I was taking a walk on a very hot summer day. When I first stepped outside I had an immediate hot flash and almost went back in the house. But I decided to press on with thoughts of a trim figure at my son’s wedding next year.

 

As I walked along listening to upbeat music I became more and more appreciative of the beautiful day the Lord provided. Along the next block, as I walked in the shade, I soaked up the beauty of some very lovely yards that I wouldn’t have appreciated if I’d gone back in the house.

It made me think about how we often are living for the moments and events ahead of us rather than this very moment.

In the Spring it’s easy to get outside and appreciate the beauty and freshness of the Spring season.

But there is a beauty in THIS day too.

Yes have goals and dreams and work toward them.

But don’t forget to appreciate and enjoy this day too.

Each day is part of that journey. As they say, enjoy the journey, not just the destination.

Be blessed! Be inspired!

Dayna Camp

 

me and my girls

 

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Is The Sovereignty of God Harsh?

A week ago today, we said our good byes to sweet Nellie Adelae Grace at the cemetery and “placed her in the arms of Jesus”. We say it that way because, although she is already in His arms, it gives us comfort.

Many times things in this life are just unexplainable. To us they don’t make sense. And to us they sometimes seem just downright wrong.

It’s times like these that my main and best consolation is in the Sovereignty of God.

What do you think of when you hear the words, “The Sovereignty of God”? Does that sound harsh?

Does it make you feel like God has no feeling?

Some people tend to think of the Sovereignty of God as though God were a chess player and we are His pawns He moves around on His own whim.

Literally it means,

There is absolutely nothing that happens in the universe that is outside of God’s influence and authority. As King of kings and Lord of lords, God has no limitations. (for more see)

Here are some verses in the Scripture about God’s Sovereignty:

 

  • God is above all things and before all things. He is the alpha and the omega, the beginning and the end. He is immortal, and He is present everywhere so that everyone can know Him (Revelation 21:6).
  • God created all things and holds all things together, both in heaven and on earth, both visible and invisible (Colossians 1:16).
  • God knows all things past, present, and future. There is no limit to His knowledge, for God knows everything completely before it even happens (Romans 11:33).
  • God can do all things and accomplish all things. Nothing is too difficult for Him, and He orchestrates and determines everything that is going to happen in your life, in my life, in America, and throughout the world. Whatever He wants to do in the universe, He does, for nothing is impossible with Him (Jeremiah 32:17).
  • God is in control of all things and rules over all things. He has power and authority over nature, earthly kings, history, angels, and demons. Even Satan himself has to ask God’s permission before he can act (Psalm 103:19).

Understanding the Sovereignty of God by understanding His Character

When you know and understand God’s character, you begin to see His Sovereignty in a whole new and personal way.

What is His character?

Not only is He  all powerful, all knowing, but He is Peace, Hope, Joy, Forgiving, compassionate, patient, merciful, full of grace and He is Love.

When I see Him from that perspective, His wonderful character, I have a whole new way of seeing His Sovereignty.

He is Lovingly Sovereign!

This is so obvious in Romans 8:28.

…” that in all things God works for the good of those who love Him, who have been called according to His purpose.”

 

This knowledge is so wonderful to me! Knowing and believing that our God is Lovingly Sovereign is such a comfort and gives me such peace and hope!

I know of some Real Life examples of the Sovereignty of God. I’ll share a few with you right now:

Sweet baby Nellie’s paternal grandmother, Cheryl, shared this with me.  Cheryl lost her second baby through a miscarriage. Although she was so sad and devastated, it wasn’t long afterwards that she became pregnant again with her son Caleb. If she had not miscarried, there wouldn’t have been a Caleb, who is the sweetest, most loving husband to my dear daughter Hannah. In the midst of sadness, there came joy. The loving sovereignty of our God.

And here is another:

Hannah’s paternal grandmother, Mrs. Camp, had a great deal of trouble carrying her son, Marshall, even to the extent that she had to have complete bed rest in a hospital for over 70 days! In fact, she was even told by the medical personnel to just get up and lose this baby and try again! If she had listened to them she would not have had Marshall and there wouldn’t have been a Hannah who is Marshall and my daughter.

Is the Sovereignty of God Harsh? I don’t think so for one minute!

Although we are so sad to say good bye to sweet Nellie, we know and are comforted by the fact that God is Lovingly Sovereign.

We find comfort in Isaiah 55:8 & 9:

“For my thoughts are not your thoughts,
neither are your ways my ways,”
declares the Lord.
“As the heavens are higher than the earth,
so are my ways higher than your ways
and my thoughts than your thoughts.

And Also:

“Weeping my last for the night,

but a shout of joy comes in the morning.”

Psalm 30:5

For the lover of Jesus Christ, they will find comfort in this knowledge too.

May this be your knowledge and understanding as well. May you see the loving sovereignty or our great God in all things your you life. That is my prayer.

 

If you have been blessed and encouraged by this post, please share it.

I would love to hear your thoughts!

Be blessed! Be inspired!

Dayna Camp

 

 

 

 

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What Does Sanctity of Life Mean These Days Anyway?

In a day and age where the sanctity of life has come to mean saving the baby animals, (save the baby seals! save the whales, save the …….) rather than saving the baby humans, where people make a decision whether or not to abort (throw away) their baby based on convenience or finances, there are loving and “deserving” couples who would give anything to save and have their baby.

Over the past week, our family has been through a huge emotional upheaval as we have experienced one of the saddest and most tragic losses. Our sweet daughter and her loving husband had to bury their first born after 32 weeks gestation. As far as we could tell, Nellie was perfect! I’ve known many babies to live a healthy, normal life who were born younger than that. And yet, at the same time, we know that it is actually legal to abort a baby that late into the pregnancy. How tragic! How appalling!

How is it that society has come to that? How is it that the sanctity of human life has come to have very little meaning in our culture?

I believe that this disregard to human life is founded in a disregard and lack of reverence to the Creator of all life. Our society has become so human centered where our worship is a worship of ourselves. It’s all about me. It’s all about humans being at the center of the universe. We’ve gotten so off-base. In fact, it’s modern day idolatry:

All the various forms of modern idolatry have one thing at their core: self. We no longer bow down to idols and images. Instead we worship at the altar of the god of self. This brand of modern idolatry takes various forms. Read more Here.

If we really and truly saw God as the Creator of the Universe and revered Him then we would have a much different perspective on human life. We would see humans as “created in the image of God” and we would believe that

“In Him we live,

and move,

and have our being.”

Not in “Self”.

And we wouldn’t dare destroy this little life being formed in the womb but would do everything we could to protect it and nurture it.

That would be our part – to see the Divine as the Divine Creator and ourselves as the created, not the center of it all.

So what does the sanctity of life actually mean today? What does it mean to you?

If these thoughts and musing from a grieving mother and grand mother strike a chord with you, please share this and leave your comments too.

Thank you!

May you be blessed and inspired!

Dayna Camp

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Dayna’s GraceNotes Begins!

Why the name Dayna’s GraceNotes?

Watch the video to see my explanation. Then I will sum it up afterwards.

So for the past several years I’ve had a strong desire to inspire, encourage and motivate people with small snippets or nuggets of life success tips.

First of all, I am a musician. A grace note is a musical element. It is a very short note played just before main note. Keep the idea of “short” in mind.

Second, “note” is the idea of a short bit of information. In this case, it is a short tip. A life success tip.

And lastly, but most importunely, I am a Christian and I believe in the power of the Grace of God. It is my life purpose that in knowing me, others will experience the Grace of God and be drawn to Him.

The Bible says, “For it is by grace you have been saved, through faith—and this is not from yourselves, it is the gift of God—not by works, so that no one can boast.” Ephesians 2:8&9

Therefore, many of my “GraceNotes” will be from a strong Christian perspective which I don’t apologize for but proclaim unashamed.

It is my very strong desire that you will be blessed, inspired, motivated and encourage in life and business these life success tips through Dayna’s GraceNotes!

What do you think? Do you like this idea? Will you please go over to my new youtube channel and subscribe?

You will also be able to find all of them as I post them in their own category here on this site.

If you enjoyed this post please like, share and comment!

May you be blessed, inspired and motivated through the life success tips of Dayna’s GraceNotes!

Be blessed! Be inspired!

Dayna Camp

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The Woman in the Mirror…

“The Woman in the Mirror” is the perfect Mother’s Day gift for all my friends who are “special” mothers.

 

I read this beautiful “poem” from another “special” mom’s facebook wall and had to find the original and share it with you today! I’m thinking of you!

woman in the mirror

I saw an unfamiliar face in the mirror today. She caught my eye as I rushed to start the day. I hardly recognized this woman. What had changed in her eyes? She was no longer young, naive and viewing the world through rose-tinted glasses. What had caused the worry lines and thoughtful brow?  How could she look so fragile and weary, yet also determined and strong?  Around some corner on the road of life…….she had been shaken to the core of her very being.

There was a time when only tears and fears were reflected in those eyes. A doctor’s unexpected words, the future suddenly uncertain……gray, shadowy images of the vague and scary concept of her child coming into the world as “disabled”. An incredible journey began that caught her by surprise and would take her places she never thought she would go. The journey had been long at times and she had shed tears of pain and tears of joy. She’d had hopes and dreams dashed in the blink of an eye. She’d asked the question WHY? She’d had friends fail her and not know what to say or how to help.  She’d seen her child suffer. She’d cried silent tears into her pillow at night. Tears of exhaustion and fear. Tears of helplessness and longing.  Tears of thankfulness and relief. Tears that are choked back during the day, but are unleashed like floodwaters in the safety of the night to wash away any walls being built up to protect her heart. Nights of worry blurring into days of endless responsibility. But then slowly, but surely, her broken heart begins to heal and mend.

The same pity she had once felt as she watched a mother hold her ‘special child’ close was now looking back at her in the eyes of strangers. But a smile tugs at her lips as she suddenly realizes that now she knew the secret! The hard-fought, carefully guarded secret that was slowly revealed in the depths of her heart…..but only after the tears and anguish of the first days and weeks of this new life. The illusive truth that mothers of special children discover as they take their first faltering steps down this new path……..It was okay. She and her child could survive, even thrive!  It was not as grueling and unforgiving a road as she had imagined. The fog, confusion, despair and fear were being slowly replaced by peace, acceptance, contentment, joy and gratitude.

A mother’s unique, unconditional love changes the equation that may look hopeless and tough from those outside,  looking in. She will fight for, live for and die for her child. These special children transform those around them into different people. Stronger people. Dare I say it……deeper people. Long gone are the days when all they had to worry about was where to vacation or what color mini-van to buy. They now struggle with life and death medical issues.  They must answer their child’s questions about life’s unfairness and pain.  What remaining strength and energy they have is spent trying to make their ’family life’ as normal and happy as possible.

A twinkle returns to the eyes of the woman in the mirror as she takes a deep breath and remembers what she’s been fighting for.  How very worthwhile this journey has been! This child is an incredible gift and it is a privilege to be given the task of raising her.  Her child is beautiful and perfect in her eyes. She longs for her child to be seen by the world through this filter of love, acceptance and potential. Could others take the time to see past this little girl’s slower steps to see the life and love reflected in her eyes? Would her child be able to see herself through the filter of contentment that the woman has journeyed so long to discover?

Hope was rekindled as the woman’s eyes grew brighter. The future remained uncertain, but the incredible, protective love she felt for her child threw a warm blanket over the cold, dark storm clouds that used to threaten her very soul. As she threw open the doors of her heart, she felt the warm sun on her face and she beheld a beautiful rainbow of intense beauty and unmistakable peace. Hope still comforts this woman who cries in the middle of the night. Love gets her through each day. Faith takes her hand and leads her around each corner and through each deep, dark valley. Peace soothes her heart as she relinquishes control of their destiny to One wiser and all knowing. Joy brings laughter and smiles to those tired eyes once again. Each day is recognized for the gift it is.

I gave that woman a smile as I left her at the mirror today. I’ll see her again soon and I’m curious to see how she will continue to change and grow.  She’s not the same young, carefree woman she used to be, but that is okay.  I like who she is becoming and I feel comfortable in her life. The sun is shining, the day is brand new, my child is humming and God is so good!

By Cheryl Veenstra

 

Have a beautiful and blessed Mother’s Day!

Dayna

Dayna Camp

P.S. Were you blessed by this post of The Woman in the Mirror? Please share it with other special moms!

 

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Dayna’s GraceNotes – Persistence – Life Success Tips

Welcome to the very first installment of Dayna’s GraceNotes, Life Success Tips in small bites!

Hooray!

This is something I’ve been wanting to do for a very long time but just didn’t know how the pieces would fit together in the grand scheme of what I’m doing.

But here we are! The time has finally come!

I hope you will enjoy them and share with others!

 

 

Persistence is the name of the game if you ever expect to reach any goal.

With this life success tip of persistence, I hope you will be a little closer to reaching your goals!

If you enjoyed this Dayna’s Gracenotes Life Success Tip today, place “like”, share and leave a comment!

Oh! and Please Subscribe to my youtube channel! :)

Be inspired! Be blessed!

Dayna

Dayna Camp

 

 

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Press On – An Inspirational Video

 

As a parent of a special needs child or a caregiver for a parent or spouse, it’s easy to feel overwhelmed at times.

 

That’s when a good Inspirational Video comes in handy.

 

At times when our own family situation is very stressful, when David’s Dystonia seems especially our of control and it’s tempting to whine and complain, I try to remember this inspirational quote:

inspirational quote

 

 

I’ve inserted many of these inspiring quotes into an Inspirational Video that I hope will lift you up when the stresses of your circumstances seem overwhelming.

 

 

 

I just wanted to leave you with one of the quotes from the inspirational video because I think it pretty much sums it all up.

 

inspirational quote

inspirational quote

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Have a blessed day!

Dayna

aka. hopebuilder

I’ve recently found a unique way to blog about anything and make an extra income from home. If you would like to see my new blog please come on over. Just click the little man below.

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